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  • Writer: Erin Spineto
    Erin Spineto
  • 5 min read

This is a reprint of an article I wrote for Multihulls Magazine Jan/Feb 2013. It was geared towards sailors and crew members who are not familiar with diabetes. As a person with diabetes, it would be a great primer for anyone you may sail with to be followed up with a discussion of a more detailed plan of action.

Insulin on Board- How to prepare for and respond to a diabetic emergency on your boat

What Would You Do?

Suppose you are out on an overnight cruise with some friends and family. Your brother's friend, Jimmy, starts to get a little sweaty and shaky. He seems confused and can only answer your questions with, "Uhh. Wait. What?" You know something is off, but will you know what to do?

It just may be that Jimmy is a diabetic and is having an episode of hypoglycemia. Without the right help, your cruise may go from pleasant to scary in the next few minutes.

What is Diabetes?
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Diabetes is a group of diseases that all result in an excess amount of sugar in the blood. Diabetes can be a deadly disease, but with proper management it can be moderated so that a person may participate in any and all activities.

There are two main types of diabetes, Type 1 and Type 2. A fundamental explanation of the difference is that they both occur from a malfunction of insulin. Insulin helps cells gain access to sugar in the blood that is a necessary energy source for all body activities. Type 1 is from a pancreas that no longer makes insulin. Type 2 is when the body's cells do not respond to insulin. Type 2 is vastly more common.

How Diabetes Affects You as Captain

One in twelve people in the U.S. is affected by diabetes. At that rate, chances are high you have already sailed with a diabetic or will in the near future. As captain of your vessel, you are responsible for the safety of your crew and passengers. You have safety gear, radios, and the knowledge about what to do for your boat in an emergency. You have prepared well.

This preparation also needs to extend to your passengers and should include the sometimes uncomfortable task of asking if your passengers have any medical conditions that may present a problem while on the water.

Diabetics can be very self-sufficient people, so one of the best resources for preparation is the crew member himself. Ask what his plan is for taking care of himself during your trip. Ask about supplies he will be bringing and the proper protocol for an emergency. If you know ahead of time that you will be sailing with a diabetic, do a little research online about proper protocol and precautions.

So what are the kinds of scenarios you might encounter while sailing?

Diabetes Basics

Diabetes management is all about balancing the amount of sugar in the blood. This is done with insulin, oral medications, diet and exercise. A diabetic will try to coordinate the activities that raise blood sugar (food, stress, illness) with those that lower it (insulin, medications, exercise). Unfortunately, life is not always predictable and sometimes blood sugar levels will be out of balance. In these rare cases, it is advisable to know a little about what to be on the lookout for.

Lows or Hypoglycemia

If a person has too much insulin, not enough food or increased physical activity, his blood sugar will drop below a safe amount. Some of the symptoms of low blood sugar are shakiness, confusion, sweating, hunger, or sudden moodiness, such as crying for no apparent reason. Low blood sugar must be addressed immediately before it becomes a life-threatening emergency. If addressed quickly, blood sugars will rise and no further assistance is needed. If not, blood sugar can continue to drop rapidly and may lead to fainting, seizures and death.

What to do for Hypoglycemia

If a diabetic has any symptoms of a low, ask them to test their blood sugars. If they are low or they are unable to test, get them some sugar fast. Good sources of sugar are candy, juice, regular (non-diet) soda, or an energy gel such as Gu or Powergel. Most diabetics carry these with them at all times and will be able to take them on their own. If not, you may need to help them get the sugar. If you have a diabetic on board, do not leave port without a fast-acting sugar on board. No sugar, no sail.

It is a good idea for a diabetic on a boat to bring a Glucagon kit. This is a small package containing a syringe and vial of the hormone glucagon, which will raise blood sugar levels in a diabetic who has passed out. It does involve a few steps and a syringe, so it would be advisable to run through the steps before launch.

Highs or Hyperglycemia

On the other end of the spectrum is the situation when there is too much sugar in the blood. This is called hyperglycemia or a high. This is less time sensitive, but still needs to be addressed quickly.

What to do for a Hyperglycemia

Each diabetic will have a different protocol for dealing with high blood sugar. For most Type 1 diabetics, this includes additional insulin. Both Type 1's and Type 2's will need continued testing until blood sugar levels become normal again. It is also important to drink plenty of sugar-free liquids to fight dehydration.

If hyperglycemia continues, it can produce ketoacidosis, which can be a life-threatening condition. Ketoacidosis will produce shortness of breath, breath that smells fruity, nausea and vomiting and a very dry mouth. If a person has these symptoms it is time to get medical attention.

A Special Consideration

Watch out for seasickness in a diabetic. It is very easy to overlook vomiting as a symptom of high blood sugar, instead writing it off as the usual seasickness. If it is in fact seasickness, special care is needed. Since much of diabetes is regulated by food and drinks, if a person is unable to keep food down, they are in more danger of not being able to correct a low. A good anti-nausea remedy would be helpful in these situations.

For the Diabetic

Let's show the world that we are responsible, well-managed people who happen to deal with a disease. Be prepared with more supplies than you think you will use. You never know when a three-hour cruise will become much longer. Keep your supplies in a place that will not be compromised by the wet marine environment. Consider dry bags, and dehumidifier packets. Have a method for keeping insulin cool. Have a back up for any electronics you use in case you or they go overboard. Bring a glucagon kit and teach others on board how and when to use it.

Be open with your fellow crew. Teach them what to look for. Teach them what to do in an emergency. Reassure them that you are a competent diabetic and that most likely they won't ever have to respond to a diabetic emergency.

And let's push the boundaries of what we think is possible. Let's follow in the footsteps of those who have gone before us and look to them for information about how they did it. There are plenty of diabetics to fill this role.

EddieCrane is a Type 2 diabetic who is preparing to join the crew for the Clipper Round the world race and become the first Type 2 to circumnavigate the globe. Or there's Keegan Taberner, the 18-year-old Type 1 who covered 800 miles circumnavigating Vancouver Island to raise money for a diabetes research group. Then there's Sara who has led the way for long-distance cruising for diabetics aboard Wondertime with her husband and two daughters, cruising from British Colombia to Mexico and then crossing the Pacific.

None of these people have let diabetes stop them. Sure, there are extra preparations, but a good sailor always prepares well for a voyage. And people with diabetes are no different.

  • Writer: Erin Spineto
    Erin Spineto
  • 2 min read

After a five year hiatus from tri due to hyperthyroidism, I am back and ready to race. Tonight was bike maintenance.

The Wildflower triathlon is a mountain bike sprint so I have dragged out the fifteen year old mountain bike that I bought for Tony before we got married.

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I love that in our house it is perfectly acceptable to do bike maintenance in the kitchen. In fact our eat in kitchen nook has become the permanent home of Tony's new Franco bike.

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The tops to the PowerGel's I used to keep my blood sugars stable on my last Wildflower Triathlon. I didn't know it at the time, but I was already sick then. I am going to keep them on there as a reminder of how far I have come in getting healthy again.

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I think I used about the whole can of lube to get this bike back in shape.

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And of course, after a day battling highs, the second I start this project I go low and have to stop to correct. Can you see this morning where I took the steroids to help my asthma? Steroids and insulin don't play nicely together.

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Marks left over from the tape I used to secure my glucose meter, lancet, and test strips to my handle bars so I could test on the bike. Now I throw my Dexcom in my back pocket and ride. Got to love technological advances, they are definitely cutting down on my transition times. (No more waiting 45 seconds to get a meter result.)

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Correcting with some apple juice while I continue to work.

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The finished product. Forgive the colors, I had to get some spare parts from the bike shop that has taken up residence in our garage. It is not color coordinated, yet.

- See more at: http://erinspineto.blogspot.com/search?updated-max=2013-12-02T06:00:00-08:00&max-results=6&start=12&by-date=false#sthash.nhKswDZd.dpuf

The date has been set. The packing list has begun. The companions have been chosen. I am off into the planning stages of my next adventure. Tony, Michelle, Brian and I will be hiking from one end of Catalina to the other over two-ish days. In addition to the usual hiking/backpacking preparations, I also need to make the diabetes preparations. And there are quite a few.

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I recently came into contact with another diabetic hiker, Dylan, looking for tips. He is a ten year old who is hiking the Appalachian Trail this summer (a much bigger adventure than I can imagine) to raise money to purchase three Diabetic Service dogs, one for himself and two for fellow diabetic kids in his town. You can check him out at www.dcubed.org.

I'm always looking for cool new ways to solve diabetic problems on the trail and thought I'd share some that I have found along the way. I have a feeling there are thousands more tips out there just waiting to be shared. So your job is to add them at the bottom of this post, for Dylan and for Michelle and I.

So here are my tips, in complete random order, and probably useful only to some... (and they are just things that work for me, not in any way to be confused with medical advice or something I would advise you to do.)

FOOD, BASALS, and BOLUSES

1. I like my pump to be turned down to 45-55% for long hikes. I start it usually about an hour before the hike.

2. I cut back on boluses for food to the same percent.

3. I bring two bladders for fluids. One with just water for when I am higher than I would like, and one with what I call GatorPel. It's half Gatorade and half Propel. It gives me enough sugar to keep hiking and extra electrolytes (super important on a hike) from the Propel. When it runs out, I refill the bladder with water from the trail and pour in a pre-measured Ziploc with another dose of the GatorPel powder.

4. I never under-eat on a hike, even when I am higher than I'd like to be. I have found I burn at least 100 calories an hour on top of my usual daily calorie burn. Food early and often is very important.

5. I love to bring pre-measured trailmix in Ziplocs in an outside pouch so I can grab them easily without having to stop to get them out and slow everyone down. I make them with 240 calories of raisins, chocolate chips and Annie's cheddar bunnies (an organic version of Goldfish). For me that's a 2.0 unit bolus, or on the trail a 1.0 unit bolus.

6. Watch out for the overnight lows after a big hike. I have had to go to a 15% bolus at times. Other times if the day's hike was too strenuous my sugars would spike and become very obstinate. It really depends on the nature of the hike. After a few days on the trail, those results may also change.

GENERAL HIKING TIPS

7. Fresh socks, halfway through the day are AMAZING!!!!!

8. Dehydration is a really big concern on a hike, especially with diabetes. On my last hike, I ran out of water between stops in the hottest part of the canyon and could't take in calories because my stomach got so out of whack. And that's not a place I want to get again.

PACKING

9. Bring enough food, quick acting sugars, and insulin supplies to last more days than you expect to be out there in case you get lost or stuck.

10. Find a way to refrigerate your insulin if it gets hot, or warm it if it gets cold. No one wants frozen insulin. Consider the moisture of the air also can ruin test strips.

11. Having a favorite food for a mid-day meal will do wonders for morale. Even if it seems like it's a pain to pack. Last hike it was a soda and a chocolate candy. So worth it!! It gave me something to look forward to before and something to revel in afterwards.

CGM's

12. I have hiked the Grand Canyon with a glucose meter, and I have hiked it with a CGM. Let me just say, CGM's RULE!! If you don't have one, find a way to get one, even if it is just for the duration of the trip. With only a meter, I had to stop my group sometimes every 30 minutes to test. They hated it and we never got into a groove.

With the Dexcom, I kept it in my pocket and pulled it out about every 30 minutes to check. It also alerted me if I was dropping fast BEFORE I got low and had to stop hiking to correct and then wait for the sugar to hit before continuing on. But always keep a backup. On my last hike, my fellow Type per Michelle had her Dexcom go out within the first 30 minutes.

13. I've had a sensor pull out on other trips as well. You may want to consider additional measures to keep the CGM sensor on. I use SkinTac and have had excellent success (Just an FYI. This is not FDA approved or Dexcom approved) but those sensors stay on like no other.

14. Start your CGM an few days before your trip. I've found the first two days on a new sensor can be a little more off than later int he sensor's lifetime.

So what are your tried and true tips for taking diabetes on the trail?

ABOUT THE AUTHOR

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Erin Spineto is an author, adventurer, and advocate for type 1 diabetes. Read more-->

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Disclaimer: This site is not intended to replace, change, or modify anything your doctor tells you. Consult with your doctor before implementing any changes to your diabetes management routine.

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